Mamata urged to support treatment of rare genetic disease
Kolkata: An appeal was made today to West Bengal Chief Minister Mamata Banerjee for government support and subsidy to treat Lysosomal Storage Disorders (LSDs), rare genetic diseases mostly affecting children.
The appeal was made by the LSD Support Society at a press conference here to spread public awareness about the rare genetic disorder and its impact on the life of patients and their families.
LSD, found in about one in every 5,000 live births, comprise around 45 rare genetic disorders occurring due to deficiency of specific enzymes in special compartments of body cells.
The society urged the state government to step in to fund medical care of the affected which was huge.
The Society appreciated the gesture of Fire Services minister Javed Ahmed Khan, for his efforts to provide some support to those in need.
Khan had helped the father of a seven-year-old girl Aisha Praveen suffering from rare Gaucher’s disease which needed expensive enzyme replacement therapy by raising funds.
Institute of Child Health, through its Director, Dr Apurba Ghosh, also came forward to provide free therapy, the society noted.
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