New EU guidelines to put cancer research at risk: Experts
London: The proposed EU General Data Protection Regulation could make cancer research impossible and add a significant burden to cancer patients, the European Society for Medical Oncology (ESMO) has said.
The proposed wording of the regulation stipulates "explicit and specific patient consent", meaning that researchers would have to approach patients every single time research is planned in order to consult their data or use tissue samples stored for research purposes, ESMO, the leading pan-European association representing medical oncology professionals, contended.
"Hope for patients facing a life-threatening disease like cancer is based on advances in research," said Kathy Oliver, chair of the International Brain Tumour Alliance.
"Research progress requires access to a wide pool of patient data, even from patients who have since passed away and can no longer provide consent to allow for research that could save lives in the future," Oliver added.
This could put a halt to many public health research efforts, argued ESMO president Rolf A Stahel.
ESMO proposes that the text of the EU General Data Protection Regulation includes a "one-time consent" for research, ensuring patients are aware of what they are consenting to - with the appropriate safeguards in place, and that they can withdraw their consent at any time.
"Our proposal achieves the correct balance between the right to privacy and the right to health," Stahel continued.
It actually "empowers" patients, allowing them to choose whether to donate their data and tissue for public health research, whose ultimate goal is to find cures.
According to ESMO: "Adding the nearly impossible administrative burden of re-consenting each patient, every time, for every single project, could irreversibly slow down the accelerated pace that cancer research has gained over the past decades."
More from India
More from World
More from Sports
More from Entertaiment
- Highlights - India vs England 2nd ODI in Cuttack
- Donald Trump to be sworn in as 45th US President today
- DNA: Manish Sisodia faces CBI probe over alleged irregularities in 'Talk To AK' programme
- Exclusive: Srinagar freezes at minus 3; common man struggles for basic commodities
- Barack Obama thanks Americans for making him a 'better man'
- WATCH: MS Dhoni asks Jasprit Bumrah to go easy after he hurriedly ran out England skipper Eoin Morgan
- WATCH: How MS Dhoni saved Yuvraj Singh's wicket with another successful DRS review
- IND vs ENG, 2nd ODI: Yuvraj Singh silences critics with 14th ODI hundred, fourth against England — WATCH
- India vs England: After Virender Sehwag, Sachin Tendulkar gives Piers Morgan cricketing gyan
- Donald Trump's Inauguration Day: As it happened