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Zolgensma News

Ministry of Finance

14 Jul 2021

Import duty, GST to be waived for world’s most expensive drug for 2-year-old

A two-year-old is set to get world's most expensive drug Finance ministry has decided to waive off import duty

13 Jun 2021

Crowdfunding helps 3-year-old Hyderabad boy get world's most expensive drug

The treatment has given a new lease of life to the child, who was diagnosed with SMA when he was just one year old. In three months, the parents raised enough money to pay for the treatment. Many celebrities, including Virat Kohli, Anushka Sharma, Anil Kapoor, Ajay Devgn and several from the TV industry came forward to help the couple.

11 Feb 2021

To save 5 months Teera Kamat, Modi government gave a discount of 6 crores

5-month-old Teera Kamat, who is battling in a hospital in Mumbai, has a spinal muscular atrophy disease that does not contain a protein-producing gene. To save lives, Zolgensma injection is done for 16 crores, this injection has to be sourced from America, which is taxed 6 crores. The cost of injection after tax is estimated at Rs 22.5 crore. Devendra Fadnavis wrote to the PM for treatment of Tira.

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